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dc.contributor.authorDempsey, Laura
dc.contributor.authorDowling, Maura
dc.contributor.authorLarkin, Philip
dc.contributor.authorMurphy, Kathy
dc.date.accessioned2018-12-13T15:06:15Z
dc.date.available2018-12-13T15:06:15Z
dc.date.issued2018-05-10
dc.identifier.citationDempsey, Laura, Dowling, Maura, Larkin, Philip, & Murphy, Kathy. Providing care for a person with late-stage dementia at home: What are carers’ experiences? Dementia, 0(0), 1471301218774937. doi: 10.1177/1471301218774937en_IE
dc.identifier.issn1741-2684
dc.identifier.urihttp://hdl.handle.net/10379/14702
dc.description.abstractBackground It is widely reported that carers who provide care for a family member with dementia endure physical and psychological burdens. Not only do they fulfil an important role for the person with dementia but also for the wider society. This study aims to explore the experiences of carers who provide end-of-life care for a person with late-stage dementia at home. Method Semi-structured interviews were conducted with 17 current carers and 6 past carers of a family member with late-stage dementia. Data was analysed using interpretative phenomenological analysis. Results Four super-ordinate themes were identified which described the challenges faced by carers at different stages of their care giving journey: (1) The experience of dementia grief; (2) Parenting the parent; (3) Seeking support; (4) Death, dying and life after death. Conclusion Dementia grief was experienced by carers as a result of a relationship change and an inability to recognise the person with dementia as their mother, father or spouse. A role transition ensued resulting in the carer adopting the role of parent. Carers expressed a desire to provide care for the person with dementia at home until the time of death; however, support is required in this area at both individual and community level. Family carers require education to help identify the dying phase which will assist to minimise the shock of death. Strong evidence suggests that the burden of care may leave family carers poorly equipped to adapt to life after the death of the person with dementia. Greater pre-death support is required to facilitate a better post bereavement adjustment.en_IE
dc.formatapplication/pdfen_IE
dc.language.isoenen_IE
dc.publisherSAGE Publicationsen_IE
dc.relation.ispartofDementiaen
dc.subjectCarersen_IE
dc.subjectDementiaen_IE
dc.subjectEnd-of-life careen_IE
dc.subjectFamily carersen_IE
dc.subjectPalliative careen_IE
dc.titleProviding care for a person with late-stage dementia at home: What are carers' experiences?en_IE
dc.typeArticleen_IE
dc.date.updated2018-12-03T21:09:30Z
dc.identifier.doi10.1177/1471301218774937
dc.local.publishedsourcehttps://doi.org/10.1177/1471301218774937en_IE
dc.description.peer-reviewedpeer-reviewed
dc.internal.rssid14326877
dc.local.contactMaura Dowling, School Of Nursing And Midwifery, Room 415 Aras Moyola, Newcastle Road, Galway. 3833 Email: maura.dowling@nuigalway.ie
dc.local.copyrightcheckedYes
dc.local.versionPUBLISHED
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